Feeds:
Posts
Comments

Archive for the ‘writing for wellness’ Category

In first grade Mrs. Lohr

said my purple teepee

wasn’t realistic enough,

that purple was no color

for a tent,

that purple was a color

for people who died,

that my drawing wasn’t 

good enough

to hang with the others…

(From:  “Purple,” by Alexis Rotella, in Step Lightly:  Poems for the Journey, Nancy Willard, Ed., 1998)

For the past several days, I’ve been consumed with the task of sifting through boxes of personal mementoes:  photographs, children’s drawings, letters from friends and family, scraps of paper in a young daughter’s hand, “I love you very much, Mom.”  It’s slow work, because each item I pull from the storage boxes ignites a flood of memories and emotion, and I pause, caught up in remembrances of the past, looking at and reading everything—the task of being a curator of family history.  I’ve separated these things into three piles:  what I keep, and what I send to each of my daughters.

Among their childish drawings and notes, I found a collection of report cards, grades for their achievement in core subjects, teachers’ notes on behavior—a few outstanding, “Excellent!” written in large letters, but others expressing disappointment in one or the other of my daughter’s progress.  And I remember, too, their bowed heads and reluctance to hand over the report cards when the news wasn’t as good as I—and they—hoped.  During those tender times, mediocre grades or written disappointments from their teachers seemed to take a greater toll, feeding insecurities and fears of not measuring up—not only for my daughters, but for me, as if I wasn’t a good parent.

I walked back to my seat

counting the swish swish swishes

of my baggy corduroy trousers.

With a black crayon

nightfall came

to my purple tent

in the middle

of an afternoon…

 

I still grade myself, whether I’m writing, teaching, housecleaning, parenting or simply trying to keep the weeds in the garden under control. My internal critic is loud and vociferous.  She is no wimp, no kindly bespectacled replica of my beloved first grade teacher.  She cracks the whip, harsh in her assessment of my performance.  But we all grade ourselves, even in dealing with the ups and downs of cancer treatment and recovery.  I’ve heard “I should” voiced more than a few times from cancer patients and survivors who come to my writing groups.  They express feelings that they “should” be stronger, better able to deal with their emotions, or able to spend more time caring for their loved ones.

It happens to everyone.  Those noisy, old internalized voices begin to chide you, “you could do better than that, you know.”  Or you hear the implied criticism from well-meaning friends and family:  “Aren’t you over that yet?”  “Shouldn’t you be doing something different?”  When you feel we’ve somehow disappointed others, fallen short of some unspoken level of attainment, or let yourselves down,  your internal critics are especially loud—a veritable Greek chorus.  Your sentences with begin with “I should… but…,” and you feel guilty and miserable for what you didn’t get done or the feeling as if you’ve let others down.

A little humor can help.  In her poem, “Marks,” Linda Pastan pokes fun at the frustration of being graded–whether by ourselves or others:

My husband gives me an A
for last night’s supper,
an incomplete for my ironing,
a B plus in bed.
My son says I am average,
an average mother, but if
I put my mind to it
I could improve.
My daughter believes
in Pass/Fail and tells me
I pass.  Wait ’til they learn
I’m dropping out.

(From: Five Stages of Grief, 1978)

Here’s another poem, “Exorcism of Nice,” by Roseann Lloyd, in which the narrator takes aim at her internalized critics:

…Talk polite
Appropriate
Real nice

…Hold still
Hold it back
Hold it in

…Close-mouthed
Muzzled
Gagged
Garbled
Jammed up…

Shut-down

Oh, Wicked Mother of the Kingdom of Silence
I have obeyed you
long enough

(From Tap Dancing for Big Mom, 1996)

Chances are we all need to practice a little self-forgiveness from time to time, allowing ourselves the freedom to be messy, woefully imperfect, or terribly human.  We also need the support of those who truly understand, whether loved ones, a teacher or a physician when the going gets rough and we begin to doubt ourselves.   In the final stanza of Alexis Rotella’s poem, “Purple,” we discover how understanding and acceptance from someone, in this case her second grade teacher, can matter:

In second grade Mr. Barta

said draw anything;

he didn’t care what.

I left my paper blank

and when he came around

to my desk

my heart beat like a tom tom.

He touched my head

with his big hand

and in a soft voice said

the snowfall

how clean

and white 

and beautiful

 

Writing Suggestions:

This week, think about your internal critics, those negative self-evaluations when you experience self-doubt, insecurity or fear.

  • When have you given yourself a failing grade or felt like you’re being graded by others?
  • Was there a time you received a report card in childhood that you didn’t want to take home to your parents?  How did you feel?
  • Does your self-critic sometimes keep you from doing or saying what you truly want?
  • Try, as Pastan and Lloyd have done, silencing those tiresome internal voices with a little humor.
  • Or, was there someone, like a friend or teacher, who encouraged you and helped you overcome your self-doubt? Write about that person.

Read Full Post »

We’ve been lucky here in San Diego.  After a deluge of winter rainstorms, the sun has finally become a regular presence in the days, so much so, that when I awakened to a foggy morning, the canyon shrouded in a fine mist, I felt my mood plummet—like it does, sometimes, when I eye the aging face (one that apparently belongs to me) in the mirror.  Grey, in those moments, is the color of blah, of aging, of the mood we call the “blues,” when in fact, it’s all about grey.

Grey also was on my mind yesterday.  As I cleaned out my office closet, I inadvertently spilled a box of crayons onto the floor, all fifty -two of them.   I knelt to pick them up and replace each in the box, thinking, as I did, about my grandchildren and how their paintings are filled with bold and vivid colors.  As I picked up the grey crayon I remembered a poem written by a third year student in a writing workshop I led for Stanford Medical School last year.  Grey–the same color older women do their best to avoid, the color I associate with long, grey Nova Scotia winters.

Grey, as Sarah defined it, is full of life.  Here is an excerpt from the poem she wrote and read aloud that Saturday afternoon:

 Grey is the color of “yes, life has been here,”

and “don’t you know I have a story to tell?”

Grey is the color of pregnant clouds,

waiting to gift us with all they’ve held up inside…

 

White is before, but give me the after

Give me the ninety-year-old under her old grey comforter.

Has she lived? Well, tell me the color of her soul.

Show me the spots of grey, and tell me how you’ve lived,

the story printed dark and true in the deepest, most imperfect,

ugliest and sweetest shade.

 

(From “Grey,” by Sarah Schlegel, April, 2016)

Colors, as we know, have strong emotional associations.  Some colors elicit almost universal meaning, for example, the blue spectrum can communicate calm, but also  sadness.  Red, by contrast, expresses warmth, but also anger.  Color is often found in the lyrics of popular songs, for example, “Red Dirt Girl,” “San Francisco Bay Blues,” “Green, Green Grass of Home,” or “Say it Loud: I’m Black and I’m Proud.”  Whether a poem, love song, the hard beat of rap, or smoky voice of a jazz singer, the mention of a color immediately evokes feelings, memories or a mood.

Humans make all sorts of color choices, every day. We color-code our children’s genders from birth—blue caps for boys and pink caps for girls in the hospital nursery—and paint our bedrooms sea foam green and lemon meringue yellow for serenity. We are intimately familiar with Coca-Cola’s red script, McDonald’s golden arches, and Starbucks’ green mermaid. Red means “stop” and green means “go” in contexts far away from the traffic light—using the colors on food labels has been shown to lead people to make healthier choices. This just goes to show how deeply colors can become lodged in our mind.  (“How Color Shapes our Lives,” by Elijah Wolfson, The Atlantic, Jan. 29,2014)

But for each of us, some colors  have negative or unwarranted associations.  (I can’t look at a bottle of the pinkish-orange French dressing on grocery shelves without remember the bicycle accident and severe concussion I suffered in sixth grade).  And in the current climate of politics with issues of cultural differences and diversity are dominating the news, another color, “brown,” may have less than positive connotations for some individuals.  In the children’s book, Tan to Tamarind:  Poems about the Color Brown (2009) by Malathi Iyengar and Jamel Akib, young readers are asked, “when you look in the mirror, what do you see?” and in a series of poems, are offered fresh and enchanting ways to think about being brown and the color brown, just as Sarah’s poem about the color grey did for me.  Here are a few of Iyengar’s  images evoked by the color brown.

A mug of hot chocolate,

smooth and creamy brown…

 

Milk-tea brown

   Spicy sweet masala tea brown

 

Reddish brown mountains…

Strong, unyielding brown

Warm, abiding brown

 

Brown leaves crunch and

crackle under our shoes in fall

Acorns in October…

 

Color also plays a role in cancer,  in cultural differences and treatment as well as in the writing by cancer patients and survivors.  A 2009 article, “The Many Shades of Survivorship,” by Kathy Latour, appearing in Cure Today, December 2009, explored the issues of cultural differences in cancer care and treatment, including lack of healthcare access, early diagnosis and individualized treatment.

Have a read-through the two volumes of The Cancer Poetry Project, one of my favorite anthologies edited by Karin Miller, reveals that color is often used to explore the complex emotions of cancer and, sometimes, in unexpected ways, for example, in “Bi, Bye-Bye, Buy,” by Mary Milton, who infuses her poem with humor and color, inspired after a friend advised her “Don’t start buying stuff to compensate” as she prepared for her mastectomies.   She describes her purchase:

…a sheet of bed sheets dusty coral
so blood stains won’t show much…
and shirts that open in front
one short-sleeved white
bad choice of color but I liked
its spirited portrayal of zebras
galloping through ferns
and gold paint splats
Besides it was on sale…

(in: Volume One, 2001)

People observe the colors of a day only at its beginnings and its ends, but to me it’s quite clear that a day merges through a multitude of shades and intonations, with each passing moment. A single hour can consist of thousands of different colors. Waxy yellows, cloud-spat blues. Murky darknesses.  (Marcus Zuzak, The Book Thief, 2005)

Writing Suggestions:

How does color affect or inspire you–whether in mood, belongings, cancer or skin color?  This week, explore colors in your life.

  • If you are person of color, write ways in which you have experienced any differences in treatment or care.
  • If you could describe cancer in color, what would it be like?
  • What colors hold the most emotion for you? Describe them.
  • Think of your favorite color. Step outside and find five to ten examples of that color in nature.  and try incorporating those images in a poem.
  • Here’s an exercise we’ve done in my cancer writing workshops: Draw, paint or paste colors on a blank page, one that symbolizes your feelings—whether fear, anger, a punch to the gut, desolation, boredom, or even hope.  Then brainstorm the words and images that come to mind before writing.   Write for twenty minutes—longer if you wish.

 

 

Read Full Post »

For the past two weeks, I’ve been tackling the bins of belongings stored in our garage, a necessary task as we continue to prepare for a move.  Frankly, I’ve been shocked at how much of the boxes contained things that belong solely to me:  keepsakes I kept for reasons now not clear, photographs of sights seen on vacations, materials I used to use in my writing groups, and more than a few containers of journals, one dating back to high school, another to my undergraduate years, and many more,  prose and poetry that documented my life, especially those that documented particularly challenging or painful periods, a reminder to how writing has helped me heal and weather the difficult chapters of my life.

There was another carton, also filled with booklets of writing—not mine–but the stories and poetry written in the “Writing Through Cancer” workshops I’ve led over many years.  Some of my first group members’ writing was featured in both my books, A Healing Journey (2004) and When Words Heal (2006), but these were printed in booklets, compilations of the writing shared in the groups and printed for the participants at the end of each series.  I sat on the floor and through them yesterday afternoon, remembering faces, individuals’ cancer experiences, many who recovered, and some whose lives were taken by cancer.

The expressive writing workshops are intended to help people write about the experience of cancer, however raw and unwieldy, and in whatever way most natural to each.  Some write narratives, others write poetry, but the form is inconsequential.  What matters is the act of expressing what cancer is for each person, finding ways to make sense of the chaotic emotional experience of it, and supporting their efforts to better cope.  Invariably, a vibrant community of cancer patients and survivors forms through the writing and shared stories—all of it beginning with that word, “cancer,” the one that turns your life upside down and inside out.  Writing for those in the groups, as it has also been for me, provides refuge, release and a way to help heal from the emotional upheaval of cancer.

“Think of the time you first heard that awful word, “cancer.”  This is the prompt that most often begins our first session.  As you might imagine, the descriptions of the moment and of cancer are as unique as the people who come to write and share their

One writer used the simple form of an alpha poem, each line beginning with a letter in the word “Cancer:”

Caught off guard in the midst of my otherwise life,

Apocalypse entered and through me from the highest rooftop.

Nothing I already know about anything prepared me for the fall…

(K.M., 2013)

Another writer communicated the moment of diagnosis in a short three line haiku, powerfully communicating her experience in seventeen syllables:

In the white office

oncologist in white coat

I brace for the wave

(V.S., 2014)

Often, as the workshop progresses, many writers portray cancer through metaphor, by making a comparison with something else.  In many ways, the metaphor not only creates a striking image, but it helps to defuse cancer’s emotional potency.  For example, one writer described her diagnosis as entering a foreign country:

We have entered the country of Cancer

My body and I…

A foreign country

Unmapped

Unknown…

(J.E., 2010)

Yet another writer described her cancer experience in a humorous, yet powerful, piece entitled “Cancer Boot Camp,” beginning with the patient standing at attention:

Cancer

Cancer

Cancer

Can Sir!

I Can Sir!

Yes I will heal it.  I can Sir!

Yes, I will survive it.  I can Sir!

(J. N, 2016)

“Cancer” also often becomes a character, allowing the writers to visualize it differently, even talk back to it.  Some cancers, this next writer tells us, are less common and more “hidden” in the body than others—and, thus, more frightening.

Some cancers arrive with fanfare,

trumpets, an engraved invitation…

But some cancers know how to hide.

They defy the eye, the scope, the scan.

They are not the usual suspects…

(K. M., 2013)

 

For another participant, cancer is “The Thief,” is stealthy and accomplished, who robs the writer of her security:

He is a thief.  Not an ordinary thief, who steals purses, jewelry or a car.  Instead he steals more person, more precious things.  Irreplaceable things…I see him finalizing his plan to steal my peace of mind, my security in believing I can control my health…                                                                        (N.S. 2014)

“If cancer is like a song sung off-key,” another group member wrote in a poem entitled, “The Metaphors of Cancer,” “then cancer interrupts the beautiful song of our hearts…”

If cancer is like a bird falling from the sky

Then cancer craves the immediate warmth of a gentle cupped hand

If cancer is a tremendous energy and force

That comes in the winter of our lives

Only to disappear after leaving its mark

Stimulating new growth

And hope

As we fight for Spring.

(T.E., 2014)

These are only a small sample of the many poignant, humorous, and powerful pieces of writing that are created and shared–all under a time limit!–in our expressive writing groups.  The writing that I  witness in those sessions is, undoubtedly, among the most moving  I’ve ever experienced.  Many participants come to the group saying, “I’m not a writer, but…”  And I quickly remind them that the great poet William Stafford had a wonderfully succinct way of describing a writer.  “A writer,” he said, “is someone who writes.”  And so they begin, finding a way to express what, in those first weeks after diagnosis, seems nearly unexpressible, and often surprising themselves by the beauty in their words, writing in ways that move us and touch our hearts.

Writing Suggestions:

How do you experience cancer?  What images and descriptions do you use?  Expand and explore them in a poem or short narrative.

Many times during the workshop, we begin by reading “Thirteen Ways of Looking at a Blackbird,” by Wallace Stephens, a collection of different ways of seeing or experiencing a blackbird.  Here is an excerpt:

I 

Among twenty snowy mountains,   

The only moving thing   

Was the eye of the blackbird.   

 

II 

I was of three minds,   

Like a tree   

In which there are three blackbirds.   

 

III 

The blackbird whirled in the autumn winds.   

It was a small part of the pantomime.   

 

(From:  The Collected Poems of Wallace Stevens, 1954)

After reading the poem, I invite the group to write their own poems, modeled after Stephens, but focused on cancer.  Trying writing your own poem in the manner of Stephens, describing thirteen different ways of looking cancer.

Read Full Post »

 

She is alive.  Although her doctors said

there was nothing to be done, she is home,

planting her summer garden, is not dead

and plans to eat everything she has grown…

She will live beyond the harvest and what will not grow

is her tumor, its flowers held captive

and still beneath her heart.  Only the live

wire of her will separates her now from

the future…it will come

sooner or later, but this is her time

to cultivate and seed.  She is alive.

(From: “Seed,” by Floyd Skloot, in The Cancer Poetry Project, V.1, 2001)

At first I was afraid, I was petrifiedRemember the 1979 hit, “I will survive,” by Gloria Gaynor?  Decades later, it remains one of the most famous of disco songs and singer Gaynor’s single biggest hit.  In 1981, I nearly wore out my vinyl recording of it, a gift from a friend as I struggled with traumatic loss and becoming a single mother of two daughters.  Night after night, as my children slept, I retreated to the living room, turned on the stereo, and as Gaynor belted out her lyrics, danced wildly around the room in the dark, trying, for all I was worth, to believe that I, too, would survive:  And I grew strong and I learned how to get along

We all must learn to survive the hardships that life presents, whether loss, life-threatening illness, trauma and hardship.  For those who must face a diagnosis of cancer, survival dominates each day:  surviving the surgeries, treatments, and, hopefully, the cancer itself.  The term “survivor” has become part of the cancer lexicon and defines anyone living with cancer, terminal or not.  Yet  it is a term that can describe anyone at different times in our lives.  The definition of “survivor” in The Oxford American Dictionary is “a person remaining alive after an event in which others have died,” such as those 9/11 survivors or those who survived the sinking of the Titanic.  It is also a term that the Oxford defines as “a person who copes well with difficulties in… life,” practically synonymous with being human.

A few years ago, as I was preparing for a “Writing Through Cancer” session at Scripps Green Cancer Center, Nadia, living with metastatic breast cancer, arrived early and quietly handed me an envelope.  “Wait to open it until everyone arrives,” she said.  A short time later, as everyone was seated, I opened N.’s card, surprised to see the words, “Happy Birthday” on the front of it.   It wasn’t my birthday or N’s.  “Wait and see,” she said.  “Everyone will have a birthday sometime.”  I opened the card and that’s when we heard Gloria Gaynor’s belting out “I will survive.”  Everyone in the room burst out laughing.  Nadia smiled.  “We’re all survivors,” she said.  Indeed we are.

What ignites our will to survive and helps us cope and keep going?  It’s different for all of us and yet, so much the same.  Hope is surely one of those things that keeps us going.  The support of friends and loved ones are also important to our will to survive.    I remember the December day in 2008 when my physician came to the hospital where I had been taken for observation and a battery of tests after passing out and collapsing on the sidewalk.  “We think it’s your heart,” she said, her gentle segue into the preliminary results of my tests.  I stared at her in disbelief and panic.

“Not my heart!” I cried.  “But I do all the right things.”  Tears filled my eyes.  “I can’t die yet,” I sobbed.  “I have a grandson ready to be born in two months.  I have to be there.”  The cardiologist arrived a short time later, and in a manner calm and reassuring, explained that I had heart failure, and as I began to cry, quietly smiled and said, “you’re going to live a long time, Sharon,” and we’ll make sure of that.”  Two months later, I held Nathan in my arms minutes after his birth.  Nathan, despite the love I have for all three grandchildren, has, perhaps, his grandmother’s heart most firmly in his grasp.

Ann, a beloved Scripps group member who died from metastatic cancer, demonstrated the courage and determination to live fully for as long as she could, filling her days with family, friends, travel, and joy.  She was determined to be on hand for her first grandchild’s birth, even though the odds were against her.  A month before her death, she was present for his birth and able to hold him in her arms for the time she had left.  I have no doubt that his impending arrival strengthened her will to live and experience the joy of his arrival.

During a session I led at the Stanford Cancer Center several years ago, I posed the question to the group of cancer writers:  “What keeps you intent on surviving cancer?” Ali, who has since recovered from colon cancer and now leads the Stanford group, wrote a poem entitled, “Why I Need to Survive,” using the words of her children, (who were quite young at the time):

Mommy, the trees look like boogers on sticks.
Mommy, can we walk to the sunset?
Mommy, how did God make the ocean?
Mommy, next time will you be my mommy?
Because I don’t want the other mommies.
I only want you.

John, another of the writers from my former Stanford group, survived acute lymphoblastic leukemia for a full five years after his diagnosis, intent on living as long as he possibly could.  He wrote poignantly, often humorously, and honestly about his cancer battle in the Stanford group and later, on his blog.  A year before his death, he sent me an essay titled “What I’ve Learned,” summarizing lessons learned during his cancer journey, ones that portrayed his will to survive despite a terminal disease.  Among the many bits of wisdom gained during his illness,  he reminded us that survival, no matter how lengthy, is about living fully, for as long as we have.  Among his survival tips were:

  • Work at what you love…
  • Travel light.
  • Do what the doctors tell you.
  • Offer support when you can and it will come back to you when you need it. ·
  • Cherish the ones you cherish.
  • In the end, all your physical beauty and prowess will leave you. You must still love that person in the mirror
  • We all will die eventually, so find a way to face death without fear. Don’t dwell on death, but enjoy each day as best you can.

Writing Suggestions:

This week, explore the topic of survival.

  • Why do you need to survive?
  • What life difficulties, illness or heartbreak have you overcome or endured?
  • What keeps you going?
  • What ignited your will, that indomitable human spirit that refuses to give up or give in?

 

Read Full Post »

Inside every patient, there’s a poet trying to get out.—Anatole Broyard, 1990

Poetry and medicine share a long history, dating back to the Greek god Apollo, who was responsible for both healing and poetry.  Today, The use of metaphor, a poetic tool and figure of speech comparing two things seemingly unrelated, is common not only in poetry, but illness and everyday life.  Consider the sports talk that dominates this Super Bowl Sunday, one example of how metaphors permeate our everyday lives, in the language we use and in the way they influence our thoughts and actions.  For example, we use sports metaphors almost unconsciously to describe experiences in our daily life.  In the workplace, you strive to be  a “team player” or be encouraged to “run with a good idea.”  In budding romance, a boy might ” “make a pass at someone,” or in an emotional argument between two people, one is told he or she is “way out of bounds.”

There’s little doubt that our metaphors are visual and illustrative, but they also run the risk of creating stereotypes or confusion, even becoming clichés.   Some, like sports and military metaphors are so common in our daily language, they are used routinely to describe medical experience.  In “The Trouble with Medicines’ Metaphors,” (The Atlantic, August, 2014)  author Dhruv Khullar, MD, wrote:

The words we choose to describe illness are powerful. They carry weight and valence, creating the milieu in which goals of care are discussed and treatment plans designed. In medicine, the use of metaphor is pervasive. Antibiotics clog up bacterial machinery by disrupting the supply chain. Diabetes coats red blood cells with sugar until they’re little glazed donuts. Life with chronic disease is a marathon, not a sprint, with bumps on the road and frequent detours...  Military metaphors are among the oldest in medicine and they remain among the most common. Long before Louis Pasteur deployed imagery of invaders to explain germ theory in the 1860s, John Donne ruminated  on the “miserable condition of man,” describing illness as a “siege…a rebellious heat, [that] will blow up the heart, like a Myne” and a “Canon [that] batters all, overthrowes all, demolishes all…destroyes us in an instant.”

As Khullar points out, “…we’ve internalized these metaphors, so much so that we often may not recognize how they influence us.”  Yet metaphors help us understand one another.  They offer a way to make sense of the emotional chaos accompanying a cancer diagnosis and communicate our feelings to others. Khuller referred to a 2010 study that found physicians use metaphors in nearly two-thirds of their conversations with patients with serious illness.  “Physicians who used more metaphors were seen as better communicators. Patients reported less trouble understanding them, and felt as though their doctor made sure they understood their conditions.”

Metaphors get our attention.  They’re visual, sometimes visceral and offer us a shorthand route to emotions and a vivid way to communicate and understand the experience of illness.  They help the listener or reader understand and appreciate what we are experiencing.

Consider the poem, “The Ship Pounding,” by former poet laureate, Donald Hall.  He offers us a glimpse into the final months of poet Jane Kenyon (his wife) and her struggle with leukemia through metaphor, creating a visual image of a ship filled with passengers, heaving in rough waters:

Each morning I made my way   

among gangways, elevators,   

and nurses’ pods to Jane’s room   

to interrogate the grave helpers   

who tended her through the night   

while the ship’s massive engines   

kept its propellers turning…

At first, the narrator is hopeful:

The passengers on this voyage   

wore masks or cannulae

or dangled devices that dripped   

chemicals into their wrists.   

I believed that the ship

traveled to a harbor

of breakfast, work, and love.   

But Kenyon’s illness cannot be cured, evident in the final lines, as the narrator waits to hear his wife call and knows he must be ready to:

… make the agitated

drive to Emergency again

for readmission to the huge

vessel that heaves water month   

after month, without leaving   

port, without moving a knot,   

without arrival or destination,   

its great engines pounding.

 

(From “The Ship Pounding,” In Without, 1998))

Hall has given us a powerful image in his metaphor, and by comparing one thing to another, we see and understand it conceptually and emotionally.

When Anatole Broyard, whose book, Intoxicated by My Illness and Other Writings on Life and Death (1993), his experience of terminal prostate cancer, wrote:  Always in emergencies we invent narratives. . . Metaphor was one of my symptoms.  I saw my illness as a visit to a disturbed country. . . I imagined it as a love affair with a demented woman who demanded things I had never done before. . .   When the cancer threatened my sexuality, my mind became immediately erect. 

Arthur Frank, sociologist and author of At the Will of the Body:  Reflections on Illness (1991), a memoir of his experiences of cancer and heart attack, describes his illness and recovery as a “marathon.”  Not surprisingly, Frank is a runner, and the physical and mental demands of the marathon were apt comparisons to describe his experiences of illness.

Kat Duff, diagnosed with chronic fatigue and immune system dysfunction syndrome, wrote The Alchemy of Illness, (1993) exploring illness narratives as a way to gain insight into the nature of illness.   She compared her illness to a landscape, a wilderness, or coral reef, and health as an adventurous voyage through it.

Macklin Smith, diagnosed with leukemia, compares the hospital to a prison in his poem, “Independence:”

Even incarcerated men and women can achieve some independence
Through their choice of TV programming, wardrobes, even e-mail,
Depending on the warden’s policy and type of prison,
Although in the super-max federal system they cannot choose
Any of these things: they’re in solitary 23 hours a day, strip searched
prior to their hour of exercise, and never go outside, no
window, and they’re under artificial lighting night and day…

(In:  Transplant, 2002).

These are only a few examples of the metaphors others have used to describe and communicate their experience of illness, but, as Anatole Broyard reminds us, metaphors do not belong solely to the world of poetry and literature, rather,  “Metaphors may be as necessary to illness as they are to literature, as comforting to the patient as his own bathrobe and slippers.”

Writing Suggestion:

  • This week, explore the metaphors you use to describe your cancer experience—or any other difficult and painful chapter of life. What images do our metaphors convey?
  • Begin with a phrase such as “Cancer is a…” or “illness is like a…” and finish the thought, noting what image or word emerges.  Remember, write quickly, without editing.  Set the timer for five or ten minutes and keep your pen (or fingers) moving.
  • Once you’ve finished, read over what you’ve written.   What surprises you?  Do you discover any unexpected metaphors?  How do they help to describe and explain your experience of illness or hardship? Perhaps your metaphors can inspire a poem or a story that describes your experience of illness or hardship in greater detail.

Read Full Post »

Early this morning, I checked my emails and scanned the Facebook posts appearing from yesterday’s massive protest women’s marches across the country.  I kept returning to the images of the hundreds of thousands of women and men around the world who united to make their voices heard.  One, a photograph of my granddaughter, marching alongside her parents was especially touching, reminding me the many years ago, when her grandmother and grandfather joined in civil rights and anti-war protests.  Whatever one’s political preference, the right to peaceful assembly and to speak out, remains one of the most precious of our democratic rights.

I also received a photograph from Washington D.C. from a friend who made the trip to Washington to join the protest.  She lives with lung cancer and has written in my expressive writing groups for years.  She sent a few of us her selfie, decked out in pink, hat and tee-shirt, masses of marchers visible behind her.  It was a day of celebration and exhilaration as, after a divisive and troublesome period of political campaigns, women and men across the country mobilized in support of women’s rights—of human rights–and make their voices heard the day after the new president began his term.

I lingered over my friend’s photograph, inspired by her determination to travel across the country and join in the march at the capital and by her courage, like so many other men and women living with cancer have demonstrated in so many ways.  I recalled another Facebook photograph sent  recently by another member of my workshops, a woman who has written with me since 2009.  She lives with metastatic breast cancer and also, more recently, multiple sclerosis.  The photograph she sent was a celebratory one: her smiling face as she  completed a half marathon last week, another of her continuing participation in local walks or runs organized in support of the fight against breast cancer.  More than a few of us have been humbled by her courage and spirit in recent years.

When I think of the many marches in support of curing cancer it’s not just breast cancer that inspires people to participate.  Google “cancer walks and runs,” and you’ll find many different events and cancer organizations organized to publicize and raise funds for cancer research.   Survivors,  many living with metastatic cancer, and their friends and families participate, united in a fight for life and a cure for this relentless and dreaded disease–called “The Emperor of All Maladies”–which has reached nearly epidemic proportions.

According to the National Cancer Institute,  an estimated 1,685,210 new cases of cancer were diagnosed in the U.S. in 2016, and 595,690 people were projected to die from the disease.  It’s not just women’s rights that were highlighted in yesterday’s march, but among them, equal access for everyone to affordable healthcare.  Those already engaged in the battle against cancer, whether breast, lung or one of the many other cancers, know how very critical healthcare coverage is.

Killing a cancer cell in a test tube is not a particularly difficult task: the chemical world is packed with malevolent poisons that, even in infinitesimal quantities, can dispatch a cancer cell within minutes. The trouble lies in finding a selective poison—a drug that will kill cancer without annihilating the patient. (Siddhartha MukherjeeThe Emperor of All Maladies: A Biography of Cancer, 2009)

 Two weeks ago, I was asked by Cancer Resource Network, an online health magazine, if I would write a short statement about World Cancer Day, which occurs February 4, 2017.  I admit that I knew little about the event or its history and quickly looked for the website to learn more.  Established by the Paris Charter and adopted at the World Summit Against Cancer for the New Millennium in Paris, February 4, 2000, it’s a day for the world to promote research for a cure, the prevention of cancer, and upgrading patient services.  It is dedicated to informing and mobilizing the global community against the disease.  According to the website, 8.2 million people die from cancer worldwide every year, and 4 million of those between 30 and 69,  die prematurely.  It’s shocking.  Yet I doubt few people in the world have not been affected, in some way, by cancer.

In the United States, one in three women and one in two men will develop cancer during their lifetime. A quarter of all American deaths, and about 15 percent of all deaths worldwide, will be attributed to cancer. In some nations, cancer will surpass heart disease to become the most common cause of death.”   Siddhartha MukherjeeThe Emperor of All Maladies)

The World Cancer Day 2017 tagline is We can. I can.  It’s a call to action, intended to support how we, individually or collectively, can help “to reduce the global burden of cancer.”  As of this morning, the site’s “map of impact” shows 167 events happening around the world in support of World Cancer Day.

Just as the world witnessed the enormous solidarity in support of the Women’s March on Washington, the marches inspire us to consider what actions we can take beyond marches to ensure positive change,  whether for women’s rights or for the good of many different people in the world., including the prevention and cure of cancer.

How can you take action?  Just as cancer affects everyone in different ways, there are many ways to take action for families or communities that can have a positive impact on cancer, such as making healthy lifestyle choices, asking for support, advocating for yourself and others whose lives are affected by cancer, and making your voice heard by sharing you story of the cancer experience.

Whether in support of World Cancer Day or in the renewed energy generated by the Women’s March on Washington, we have much more to do.  Ask yourself, “What actions can I take individually or with others?”  There is still much to be done to a difference in our nation and our world.

I was deeply inspired by yesterday’s marches—but it’s only the beginning.  Just as the actions we take on a regular basis to ensure that basic human rights in this country are not violated, so too does finding a cancer cure require our ongoing involvement, advocacy and support in the fight for a cure.

Writing Suggestions:

  • This week, focus on the question: “What actions can I take?,” whether it is about cancer, human rights, or affordable healthcare, to name a few.  Then follow “what can I do” with “What I will do.
  • The Women’s March has inspired ten actions to take in the first 100 days of the new president’s term in office.
  • World Cancer Day is Saturday, February 4th. Why not get involved in a meaningful way?
  • Share your story. One of the actions suggested by the World Cancer Day site is advocate by sharing  your story–a way to offer support to others living with cancer and raise public awareness.  For starters, you can submit directly to the World Cancer Day site, or Cancer Knowledge Network, the online health magazine which encourages narratives (500 words) written in response my bi-monthly column, Writing Toward Wellness.  In fact, there are many possible cancer-related sites that invite cancer stories,  Health Talk Online, The Live Again Project, My LifeLine, and Caring Bridge, to name a few.

 

Read Full Post »

I’ve been talking back to Siri, the voice on my iPhone that directs my travel on the freeways and streets of San Diego County.  She’s sometimes unreliable, mapping what should be a drive to a place ten or fifteen miles from my home to a cross-country trip ending in Oklahoma or Missouri.  I’m mystified by these wildly incorrect directions, and Siri hears about it.   Since my days have been much too busy with meetings, dental and doctor’s appointments, when Siri misdirects, “she”receives the full brunt of my frustration.  (Of course, better Siri than my husband as the recipient!)

But perhaps what I experience with Siri is a good analogy for navigating through life.  It’s not always a smooth experience, whether relying on a GPS, dealing with a move, or the emotional roller coaster of cancer.  How, I wonder, did we all begin to rely so greatly on GPS devices their print counterparts–self-help books–to navigate the ups and downs of daily life?

Until I was introduced to Siri, I drove perfectly well without turn by turn directions recited by her voice.  I read maps, wrote down directions, and most often, got to where I needed to go.  I was happily self-reliant.  If I got confused, I stopped to check the map or ask someone for assistance.  No longer.  I’ve become dependent on the voice in my cell phone to guide me along any unfamiliar route.

What, we wonder, is our now habitual use of navigation tools doing to our minds? Writer David Kushner asked in a November 2015 article in Outside magazine.  An emerging body of research suggests some unsettling possibilities. By allowing devices to take total control of navigation while we ignore the real-world cues that humans have always used to ­deduce their place in the world, we are letting our natural way-finding abilities languish. 

Yet Siri is just one of the many sources of directions, instructions, and step-by-step how-to resources available.  Consider the many hundreds of self-help books on the market.  It’s likely that you, as I have done, have turned to self-help books in times of doubt and uncertainty, searching for encouragement, guidance or even self-affirmation.  As I’ve begun downsizing my bookshelves, I’ve found a few of these books still sandwiched between fiction and poetry.  There’s not a single one I finished reading; most of the pages are pristine and unmarked, suggesting I found the content neither relevant nor useful.

In the article, “Stop with the Self-Help Books Already,” author Marty Nemko offered his opinions on the plethora of self-help books:

  • Their recommendations are mainly just common sense or common knowledge.
  • They’re filled with examples that often feel concocted, too pat.
  • They propose models that over-simplify reality. For example, organizations or people don’t usefully distill into just a few types.
  • Their recommendations are often out of touch with what works in the real world. (In:  Psychology Today, June 27, 2014)

often out of touch with what works in the real world, yet self-help books represent a $10 billion a year industry.  When lives change, whether we relocate, retire, marry, have children, diet, or confronted with serious illness, hardship or loss of a loved one, there’s no shortage of books offering step-by-step advice for any and all significant life events. Even for aspiring writers, there’s an abundance of “how to” books on writing poetry, novels, nonfiction or simply journaling.

Out of curiosity, I conducted a brief search for self-help books for cancer patients on Google, immediately turning up titles such as playbooks and guides for the patient, for how to be a friend for a cancer patient, coping with altered bodies, radiation and chemotherapy, create a nutritional diet to “beat” cancer, or a guide to a peaceful death, to name a few.  Although any of us may each find one or two of books like these helpful, the dizzying number of titles makes one wonder that although any kind of change is difficult, as Dr. Jim Taylor remarked, writing in the Huffington Post, “Someone might be able to show you the way, but you have to make the journey yourself.”

Do friends need self-help books to be friends when you’re in need?  Can cancer be beaten with by following a particular nutritional plan?  Do we find guidebooks helpful when we lose a loved one?  Perhaps. We may turn to those resources at first, but gradually come to realize that no one is free of those walloping times of hardship, change and loss.  A “how to” book doesn’t make it any easier nor does it give us the answers we seek.  We discover what gives us comfort or solace as we go, trying things out, making mistakes, gradually finding our way through those difficult life chapters.

Cancer survivor, Sharon Doyle’s poem, “There’s Not a Book on How to Do This,” offers an apt metaphor for making those difficult journeys as the narrator sketches a composition plan for her autumn garden, one that celebrates and honors her cancer journey and survival:
There’s not a book on how to do this,
but there is an emphasis on composition.

The trucks that slug by under our window
hold trombones, mirrors, dictionaries.
It’s not my fault they invade
the calm of trees like cancer.  I

don’t have cancer anymore…

…I rarely remember the
uterus I don’t have.  One of my sons said,
“You were done with it right away, right, Mom?”
I guessed so…

There’s not a book on how to do this…” Think about it.  Whether cancer, divorce, the loss of a loved one, job loss—any major life challenge—there’s no a GPS or an instruction booklet to help us navigate through the upheaval, fear, or grief.  We do have the comfort of friends and family, of physicians and helping professionals, and so much more, but ultimately, the journey is ours to make, the road full of unexpected twists and turns, conundrums and set-backs.  Yet little by little, we find our way and without even realizing it, we begin composing a new life for ourselves with each step we take—one that honors where we’ve been but also embraces what we have discovered in our journey.

Doyle’s loving gifts from her family, the birdsong and flowers, are symbolic of the support that gave her courage and hope as she made her way back to health.  In the final stanza, we smile as we discover her celebration recovery and life:

I left vacant fourteen
trellis lightscapes for
balloons.

(From The Cancer Poetry Project, p. 52, The Cancer Poetry Project, V. 1, 2001)

Writing Suggestions:

This week, reflect on your difficult life journeys.  It’s unlikely you were handed a GPS or a book of instructions to help you navigate challenges like chemotherapy, surgery an altered body or loss of a loved one, job or home, each propelling you into change you never anticipated.

  • What helped you navigate the rough waters of such profound and unexpected change?
  • What internal compass—your beliefs, aspirations, or faith—played a part in helping you rediscover hope and embrace a new life?
  • What did you learn from it all?

Read Full Post »

Older Posts »